Tuesday, June 9, 2009

Answers to Questions

1 - Why is the PT saying "don't let Cameron stand!" - She says that it can encourage those muscles to stay tight instead of being loose and relaxed which can lead to muscle tone issues. We are allowed to let her stand once she starts pulling up on things - which is quite a ways away. She says that if we let her do it too much and those muscles get too tight then she will walk on her tiptoes when it comes time to walk...which we do not want! I am actually getting more and more concerned about Cameron's muscle tone because she can be so stiff and rigid...especially during feeding - which is probably part of the reflux. I have called the PT at Duke and am having their developmental therapist assess her this week to see if I am completely overreacting or if we do have reason to be concerned.
2- What type of hearing loss - the audiologist thinks that it is sensorineural hearing loss but that is a educated guess...we see the ENT to confirm this next week.
3 - Sign language - No we haven't started sign. To be honest we have heard so many conflicting things and I have been waiting to hear from the people from Beginnings (local hearing impaired resource from NC school for deaf and hard of hearing) to see what they would recommend. I am trying to read as much as possible and trying to keep talking to Cameron - which is what the audiologist said to do. Cameron still reacts to us and will smile and makes my heart soar when she tries to talk. I know that she can hear some things...it is just very limited I think. She said that it is imperative that Cameron see us react appropriately to her needs so that when she can hear she can put them together. How soon should you start sign? We are only at the smiling and cooing stage - should we begin already if we choose to do it?

Marilyn, it seems as if you are very knowledgeable on the subject of hearing impairement - any information or advice you have would be wonderful. I would love for you to email me at lele307@gmail.com


  1. You have so much going on right now and I am so sorry. As always we are praying, praying, and praying for you. As for the muscle tone issue- Nathan had the same thing and PT for the first year really helped. But his was from brain bleeds and I believe you said your girls did not have this problem. If you need to contact Marilyn she is a good friend of mine so just give me a call.

  2. Please do call me...My family is here from OHIO who are Deaf and would LOVE TO MEET ya... looking forward to chatting soon... Mar AADBSec@hotmail.com