Tuesday, April 28, 2009
Here are some pictures of Cameron's homecoming:
Cameron redid her carseat test before we left.
Cameron's monitor that must be hooked up at all times except baths.
The nurses cheered for her and blew bubbles as we left!
Aubrey meeting her sister for the first time. She was so excited to see two babies. At first she did a double take but then she had a lot of fun showing everyone that there were two sisters and where they were!
Reunited at last! Sisters together. Reagan on the left, Cameron on the right with the pacifier. So far today they seemed pretty oblivious of each other until tonight. They both started crying at the same time and boy did our house fill with noise! Then, we laid them down in the crib together and they stopped...for a bit.
Cameron seems to slowly be adjusting to being at home. Seth's mom pointed out today that Cameron is almost just like Reagan was when she came home. It is amazing what three weeks at home has done for Reagan - for the most part, she seems calmer and more like a full term baby than previously. Cameron left the NICU weighing about 5 lbs. 4 ounces.
We are so excited to be all at home together...even though that means lots of sleepless nights and chaos - we will do it together. We are so blessed to have the continued support of friends and family and their continual prayers. Our goal for the next few weeks is to establish a routine if possible and to finally all get settled in together - even though we have a ton of appointments in May coming up.
Prayer Requests for the future:
-the adjustment of all of our girls
-Cameron on her monitor - that the need for one would diminish quickly and that if it goes off for a real alarm that Seth and I would be able to address her needs promptly with no real emergency; also that we would not have a need for her cortisol shot and that she would outgrow the need for it soon.
-Upcoming appointments and retesting of Cameron's hearing
I probably will not be posting as often but promise to post pictures as time permits - we are going to be busier than ever but couldn't be happier!
Monday, April 27, 2009
Reagan had a tough day with feeding yesterday. Lots of spit ups out the nose and mouth. She choked on her medicine, lips started turning blue, and I got to use my cpr training and choking training from the hospital. Luckily I stayed calm and didn't freak out until after it was all over. Then I called Seth (sorry for those of you sitting near him who may have heard his phone in church yesterday) and started crying. Thank goodness the NICU trained us. Then, I went to visit Cameron with my parents and I was told, put her medicine in her milk...that is what we always do - I thought to myself - would have been nice to know that when she came home a month ago :). Oh well. We made it and are fine.
Aubrey has no clue what is coming tomorrow. I pray that she is just as excited about Cameron coming home as she was Reagan. She loves to help take care of Reagan and has been so loving. Every time she goes by her, she likes to kiss her on the head. She also loves to say that Reagan has stinky diapers - she thinks it is funny. Stay tuned and hopefully the next post will be pictures of Cameron's homecoming!
Friday, April 24, 2009
Cameron had her first full feed tonight. She is only on tylenol for her surgery recovery and got her IV out tonight. She has been pretty irritable, but who wouldn't if they couldn't eat and had a board taped to their arm? So, I am hoping that now that she can eat that she will be happier. The newest plan is for Seth and I to go to the hospital on Monday to get trained to use the monitor that Cameron is going to come home on. Then, on Tuesday, we should hopefully be able to bring her home. All of this will happen only if Cameron does not have any episodes of apnea and brady together. It is my understanding that as long as she doesn't need any oxygen, she could brady and still come home. I am so ready for Cameron to come home, even in spite of the bradys. I am ready for us to all be home together.
Reagan has transferred over to a new formula well. She was doing really well on her new formula mixed with milk except her reflux really seems to be acting up. It burns her when she burps and she will wake up screaming an hour after she has eaten. You can hear her belly making noises and churning. We are hoping that an increase in her dose of Prilosec will give her some relief and help her to feel better. When her reflux isn't bothering her, it is amazing how peacefully she is sleeping. Today has been a tough day for her, she has really been hurting - she gets her new dose of meds tonight.
Please also continue to pray for Aubrey and her adjustment to all of the changes going on at home. She has just gotten used to having one sister at home and we are about to add another.
Thursday, April 23, 2009
Tuesday, April 21, 2009
Monday, April 20, 2009
Sunday, April 19, 2009
Saturday, April 18, 2009
As I look toward next week, I have a number of feelings...the most is relief and thankfulness. I am so incrediby amazed at God's grace and how much He has chosen to bestow on our little family. I am so much in awe of how His hand has been at work in our lives these past four months. I can honestly say that when Seth and I first heard the stats when we were 10 weeks pregnant - 15% chance they will make it, then 50% chance, and now look at us! Just take a glance back at the pictures from December and then look at them today - aren't they amazing! Isn't God good! I know that our lives are forever changed - and not just because we now have three girls. I pray that we forever live our lives in light of the work that God has done in our lives and that when others come in contact with us that they can benefit - that God would allow for us to be used to help others. As thankful as I am for the NICU doctors and nurses, I cannot wait until their faces are not the ones that we see on a daily basis. I am so ready for us to have all this stuff figured out - not the parenting thing because I know that will never be figured out - but the feeding stuff mostly and then we can settle into the routine that will be the life of the Carter family.
Today as my Mom and I worked on putting together some meals for the freezer for those crazy days ahead, I realized that Seth and I are still going to need your prayers more than ever! Our life is about to get way more complicated and we are going to be challenged in ways that we have never realized before. I pray that I can be the Mom that these girls all deserve.
So, here is the plan (although as always, it could change) - Cameron is coming home Monday. We are to go and get her around lunch time. The doctor is double checking with the surgeon, though, to make sure they don't want to do her hernia surgery before she leaves...but more than likely we will have to come back when she is closer to 3 kg (not sure in pounds) and stay overnight for her surgery. She is eating more and more and seems to love this new formula that she is on - unfortunately, Reagan does not seem to love it....or any other formula for that matter - she is being very picky!
We are so excited that at this time in two days, the girls could be laying side by side together at last!
Friday, April 17, 2009
Thursday, April 16, 2009
Tuesday, April 14, 2009
1. Both girls are fully regressed in regards to retinopathy. They do not have to be seen weekly anymore and can be seen monthly now. Hallelujah!
2. Reagan has gained to 5 lbs. 6 oz. and has made better progress than a lot of babies that they typically see in clinic when it comes to continuing to gain.
3. Cameron has now been over 24 hours without a brady that needs oxygen and she is not spitting up like she was. She is sleeping more soundly and seems to like her new feeding plan.
4. Cameron may be able to come home sooner than we thought but she will more than likely have to come home on a monitor...or at least that is on the table for discussion right now. We will see how the week goes and then we may be having some exciting news for the end of the week.
5. Reagan's reflux is significant but it is not getting in the way of her gaining weight so aside from medication...the only other thing we are going to do right now is try her on Cameron's formula to see if that reduces some of the spit up for her. This decision makes things easier as far as both girls being on the same formula but stinky on the pocketbook because it is pretty expensive!
All in all, it seems that things are looking good...just learning what to expect from our girls since we have never had preemies before. Thanks for your prayers.
Reagan - 5 lbs. 4.5 oz.
Cameron - 4 lbs. 11 oz.
Cameron - totally starting over with feeding stuff in hopes that we can stop the bradys and figure out the feeding stuff.
Reagan - evidentally her spitting up is a bigger deal than we thought, headed to Duke today to meet with clinic docs to see if we can do anything else to help her - we just thought it was reflux. Also, Reagan getting eyes checked today.
Please pray that Seth and I will be of sound mind to convey our concerns for both girls today and that the Lord would intervene for us to help us make sense. We have had zero sleep - the roughest night yet of parenting (including from when Aubrey was little). It is tough not being able to soothe your daughter who is obviously in pain!
Hopefully all will be resolved. We will fill you in later.
Sunday, April 12, 2009
Friday, April 10, 2009
Cameron has officially made it through 2 straight shifts with no bradys or big throw ups (sorry I know that is gross). The rice cereal really seems to be doing the trick. They are continuing with the specialty formula for the next week but she has been chowing down like crazy the last 24 hours. She has eaten every 3 hours with several snacks as well....which shows because she is almost 4 lbs. 8 ounces tonight! She has gained 2 ounces the last 2 days. That rice cereal is really packing on the pounds not to mention a few extra meals a day can do that to a girl you know? I am so thankful for some relief for Cameron and some positive news for today. I pray that it will continue.
Thursday, April 9, 2009
Tuesday, April 7, 2009
Monday, April 6, 2009
Sunday, April 5, 2009
Now to Reagan, who lately has been showing some of the same symptoms as her sister...she has had trouble keeping her food down as well. We are scheduled to go and weigh in at the pediatrician tomorrow and I am praying that we can get an appointment with him to talk about all the new developments. Because they are identical, it is likely that Reagan would need this additional medication. But I really just want some relief for her. I called the doctor on Friday to let them know she was spitting up so terribly and asked if I should take out the formula additives for her and they asked me to wait until tomorrow for her to be weighed. I will be interested to see what her weight is tomorrow and what actions follow.
Please continue to keep our family in your prayers.
Friday, April 3, 2009
Reagan has also been spitting up quite a bit and after she is weighed on Monday we will be taking a new look at Reagan's feeding plan as well. Poor girls...this reflux stuff seems pretty stinky. Aubrey continues to want to "help" Reagan as much as possible. Each time it happens, I think - Where's the Camera? and then I realize that I can't get it because my hands are full with a toddler and a newborn. So, eventually I am hoping to get it together for some family photos. I am going to try to go the hospital late tonight or early in the morning and should have some updates shots of Cameron for you, too. I cannot wait until she is home. I know it will be very busy and will take some getting used to but this hour and a half round trip is getting very old and I am feeling very torn between all three girls. Please pray that I am able to meet all of their needs as best as possible.
Wednesday, April 1, 2009
4 - Before approaching check for the "stop hands" - you can see those in the second picture - those mean that she is either using the bathroom or that she is refluxing and her belly hurts. Beware, if it is that she went to the bathroom then watch out because she hates to have her diaper changed!
Just a few little tidbits from the Carter house and plenty more to come. Tomorrow - hopefully pics and little factoids about Cameron.