The longer this process goes, the more emotional I seem to get. I am reacting to all of our ups and downs emotionally - whereas before, I at least felt like I was able to keep it together somewhat. For example, tonight I called to check on Cameron and one of the nurses in the TCN that has worked a lot with Cameron in the past had her. I started crying and told her, "I really needed for you to have her tonight. You have no idea." She said that they had already been snuggling tonight and that the other baby she has is with their parents in the care by parent room so she and Cameron would be hanging out a lot tonight. I know that this is just what Cameron needs but it is also just what I need. The assurance of knowing that someone is caring for her tonight that loves her means the world to me. I know that all of the nurses care but sometimes you have a nurse that has really connected with your baby and that is very special.
Cameron had her first full feed tonight. She is only on tylenol for her surgery recovery and got her IV out tonight. She has been pretty irritable, but who wouldn't if they couldn't eat and had a board taped to their arm? So, I am hoping that now that she can eat that she will be happier. The newest plan is for Seth and I to go to the hospital on Monday to get trained to use the monitor that Cameron is going to come home on. Then, on Tuesday, we should hopefully be able to bring her home. All of this will happen only if Cameron does not have any episodes of apnea and brady together. It is my understanding that as long as she doesn't need any oxygen, she could brady and still come home. I am so ready for Cameron to come home, even in spite of the bradys. I am ready for us to all be home together.
Reagan has transferred over to a new formula well. She was doing really well on her new formula mixed with milk except her reflux really seems to be acting up. It burns her when she burps and she will wake up screaming an hour after she has eaten. You can hear her belly making noises and churning. We are hoping that an increase in her dose of Prilosec will give her some relief and help her to feel better. When her reflux isn't bothering her, it is amazing how peacefully she is sleeping. Today has been a tough day for her, she has really been hurting - she gets her new dose of meds tonight.
Please also continue to pray for Aubrey and her adjustment to all of the changes going on at home. She has just gotten used to having one sister at home and we are about to add another.