After a few good days, last night Cameron had a rough episode that bought her another 7 days in the NICU at least. She bradied when she was burping and couldn't come out of it on her own...they had to help her and give her some whiffs of oxygen. She has not had bradys like this since she was back in her early days in the NICU. Poor Cameron. I don't know what is going to happen next. They are not currently changing anything in her plan of care right now but are thinking that this brady thing is something that she may just have to outgrow. As long as she is requiring help, though, she cannot come home. Once she pulls herself out of them consistently, then she may be able to come home on a monitor (something I was praying that would not have to happen). Oh how I pray that we can miraculously find a solution to this problem.
Today was a wonderful day at our house but I still feel strange about living our lives here without Cameron. It did not feel like a complete family day today without her being here. I miss her terribly and long for the days when troubles like this are a distant memory (at least I pray that we will get to that point). Anyway, here is another picture of the big sister helping out.
Did you know that a picture of you, Seth, and Cameron is in the Duke Nursing magazine that just came out? I have a copy if you don't. Just let me know.
ReplyDeleteWhat a precious picture!! Praying for Cameron to soon be home with the rest of the family. Then Aubrey will have two little sisters to be lovin' holdin' and helpin'!
ReplyDeletetwo little cuties -- one cutie is still missing from the pic. how sweet is it that big sis and little one are bonding already. i too love how Reagan is holding onto big sister. Keep your head up - you are almost there!!
ReplyDelete