Well, this morning when we spoke to the NICU nurses we found out that the roller coaster is back again. The good news that we got was the Cameron's PDA is closed and the not so great news is that they think that Reagan's has reopened. They are watching Reagan today and her oxygen saturation (if it goes down they call it a desat) and if it continues to go down then they will order another echo. If it shows that her PDA is open again then the will most likely schedule her for surgery as early as tomorrow...if not tomorrow then later in the week.
The doctors told us that this could happen, that even if the PDA closes, it can be prone to open back up. However, I cannot lie...this is discouraging. Reagan's nurse said she could hear it yesterday and it does sound softer today (not as loud) so my prayer is that it will close back up. I grilled the nurse about the specifics of the surgery and she said that they have done it on babies smaller than Reagan before and that it is a relatively quick procedure that they do in her NICU room. She said it actually takes longer to set up for the surgery than to do the procedure. I hope that we do not have to find out first hand. This news is hard to take when we cannot go and visit yet because we have not been symptom free for 48 hours.
Cameron's nurse also shared that she saw a loop still in her tummy - which is not great and so that the doctors may continue to hold off food for her until it is gone or they may go ahead and start food in hopes that it will encourage her bowels to be more active.
We will be keeping close tabs today to see what the doctors have decided to do. Please continue to keep our girls in your prayers like you have. The PDA issue is one that we will have to pray on an ongoing basis because the doctors say that a simple infection can cause it to reopen. Also, the digestive issues are also a concern for the forseeable future because as they give the girls food and increase the amounts, the doctors are always concerned about a particularly nasty digestive infection as well.
It's hard to believe our girls will be two weeks old tomorrow. And that this Thursday they would have been 28 weeks in gestation. Thanks again for your prayers.
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I know this must be so hard to have to be away from your girls. Brian and I are praying especially hard for you, Seth, and your daughters. We love you all.
ReplyDeleteHey! I am praying for you all to get better and soon! I can't imagine how it must feel to not be able to see them. I am especially praying for Reagan and Cameron both to not have to have any surgeries and if so that God will watch over them and the doctors and that both of you will be well and can be there. There is one thing that is for sure they are little fighters!! Two weeks old, wow!! And they have already been through more than most of us. You have a lot to be proud of. Take care you two! If there is anything at all that we can do for you, please let us know. Love you all!
ReplyDeleteHi Leslie,
ReplyDeleteJust wanted you to know I'm thinking about you and praying for you. Please let me know if I can do anything for you, in any way.
Your little girls are beautiful. They are so small, but it is apparent that they are very strong! They must take after their mom.
All my love, and God bless,
Annie